Ann
Allred
Lisa Andreson
Rabbi Richard Allen
Ed Avila
Michael B.
Roseanne B.
George Beahan
Jerome Berkovitch
Bob Berry
Alison Blasko
B.R.
John Brunelle
John Cameron
Ginger Chang
Sylvia Cheek
Ronda Clarke
William Coffman
Betty Cureton
Claudia
Tom Donovan
Father Bill Edens
Rev. Joel Elowsky, PhD
Kimberly Engstrom
Keith Erikson
Adam J. Field
David Karr
C.F.
Sonia Frantz
BJ Foxley
John Fonville
L.G.
Ed Gold
Rabbi Allen Green
Mike Green
D.H.
Stephen Hall Harrison
Gerald Harsen
Luana Hess, M.D.
D. Holoman
Jeff J.
Jerome
Rev. James M. Johnson
R. Johnson
Thomas S. Johnson
John Kates
George Keiter
Timothy Kidwell
Wendy Knecht
Karla Kniss
Randy Knipple
Joyce Kovelman, Ph.D.
L.D.
Leo
Leticia
Deborah L
Benice Lindo, Ph.D.
ML
Teddy Jean May
Don Matheson
Michael
Paul Motenko
Ian Nagata
Ira Newborn
Gayle Pace
Muriel Paule
R.P.
Dawn Polito
John Pollock
Hoy Quan
Dr. R., Heart Specialist
R.B.
G. Ron
Angela Murray Rill
Betty Rome
Steven Rotblatt
Rev. Henry W. Sellers
Dr. S.D.
Don Shapiro
Lawrence R. Spira, M.D.
R. Steger
Fereydoon Tafazzoli,
Ph.D.
Pastor Jim Townsley
Joan Trent
Catherine W.
Marjoire Whitman
N.W.
Rudiger & Laurie
Wolf
Norma Young
Roberta Zuckerman
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Dec. 13,
1997
Rudiger and Laurie Wolf
Dear Dr. Cooper,
Thank you for the return of my wife's voice. I am writing this
letter so you can post it on your web site, and perhaps our story
can help others with Spasmodic Dysphonia get real help to correct
their voices.
Our story begins in January, 1997, when Laurie's voice became almost
inaudible due to a cold. This happens occasionally, and we thought
nothing of it. After a few weeks, her cold was gone. So was her
voice. Unlike previous occurrences, this time her voice did not
return to normal. After four months of trying various home remedies,
we turned to our family physician. He recommended a specialist.
The specialist recognized abnormal behavior of the vocal cords,
but felt rest would provide the answer. Laurie's voice did not improve
over the next several weeks. In July, Laurie was referred to Dr.
Truong, who suspected the diagnosis of Spasmodic Dysphonia, and
scheduled Laurie for her first Botulism Toxin treatment in two days.
The thought of having a lethal toxin injected directly into Laurie's
vocal cords left us frantic. How would they know the dosage? What
are the side effects? What is the success rate? How does this address
the root cause? To quote Dr. T**** "I suspect the patient has
spasmodic dysphonia ... a vagus nerve block will improve her condition
for about 5 minutes, but it will confirm the diagnosis". So
what happens afterward? In our intemet-based research, we found
botulism toxin is the accepted medical treatment for spasmodic dysphonia.
What we had to look forward to was painful, ineffectual treatment
of symptons, with an injection every three to six months for the
rest of her life. According to statements made to us by "victims"
of these treatments, the treatments are painful and ineffectual.
Apparently, "modem medicine" hasn't found the cure. Instead,
there appear to be a number of "experts" prescribing repetitive,
expensive, painful and problematic treatment for symptons. [sic]
We found you through your intemet site. After spending an hour
with us (45 minutes more than Dr. T****!) you suggested and delivered
a better alternative. It is now December, '97. Instead of looking
forward to another dreadful toxin injection, Laurie and I are celebrating
the Holidays, with her voice returned to full health and vigor.
No, it is not the same voice that caused the problem. It is her
real voice, the one she was intended to use. The one that you helped
her find and use comfortably, effectively. After five full day visits
over the course of six weeks, she is back to normal. No painful
injections of lethal toxins. No treatment of symptoms. Rather, you
provided the cure to the cause of her condition. At this Holiday
time, we are truly grateful to your insight, and hope that our story
may encourage others to step away from what is prescribed by "modem
medicine", and to get real help for their tragic malady.
Thank you,
Rudiger and Laurie Wolf
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